Promises and Perils
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Handout 7: Genetic Testing Worksheet

 



Choose one of the roles below. Then answer the questions following each scenario based on how you think that person would respond.The Roles

  • Father
  • Mother
  • Son, age 21
  • Daughter, age 25
  • Genetic Counselor
  • Employer



The Scenarios

  1. The mother has a family history of Huntington disease (HD), but has not been tested. The father does not carry the HD gene. The son wants to be tested, but the daughter does not. What advice would you give the son, daughter, and mother? Why?

  2. The father is in the early stages of Huntington disease. The mother does not carry the HD gene. The son has interviewed for a job, but the employer wants to have the son tested for the HD gene as a condition of employment. What advice would you give the son about taking the test? Why?

  3. Both the mother and father have a family history of HD, but neither has been tested for the gene. The daughter is considering having children, but can't decide whether to take the test or not. What advice would you give her? Why?

  4. The mother is in the early stages of Huntington disease. The father does not carry the HD gene. The daughter is pregnant with her first child. She has decided to test the fetus for the HD gene. What advice would you give the daughter if the fetus tests positive? What advice would you give her if the fetus tests negative? Why?

  5. The father has a family history of Huntington disease but does not yet show any symptoms. The mother does not carry the HD gene. Both the parents want their children to be tested, but the son and daughter have not yet decided what to do. What advice would you give the family? Why?


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